tag:blogger.com,1999:blog-5620546355443994788.post7626253502728253055..comments2023-08-15T11:03:58.591-04:00Comments on Adventures in Sparkland: Meanwhile, at the rheumatologist's office...Sparkling Redhttp://www.blogger.com/profile/12799366562472325812noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-5620546355443994788.post-4079052962611328592009-03-07T15:27:00.000-05:002009-03-07T15:27:00.000-05:00Kate: I hear you. It's taken me years to come to ...Kate: I hear you. It's taken me years to come to terms with my limitations. Actually it's a lot easier now that my friends are getting older and feel less inclined to stay out till all hours of the night. I don't feel like I'm missing out on as much by getting to bed on time.<BR/><BR/>Dianne: Thanks :-) Thursday at my naturopath's office did remind me that there is a whole realm of wholistic remedies yet to be explored. I'm feeling very hopeful.<BR/><BR/>Karen: Yes, Grrrr! It is so frustrating not to be able to name the malady. Once we can name something we have more power over it. That's true in science, folklore, and psychology. "Unknown" just doesn't do the trick.<BR/><BR/>Alex: It's so wonderful for me to hear that my writing has been an inspiration. It's humbling, because I don't understand the mechanism behind it, but if I can take the challenges of my life and somehow transform them into something that can bring grace into other lives, then it's all worthwhile. Comments like this one bless my life with meaning, and other than love itself there is no greater gift.Sparkling Redhttps://www.blogger.com/profile/12799366562472325812noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-40178224537378454422009-03-06T12:30:00.000-05:002009-03-06T12:30:00.000-05:00No, a giver-upper you are not. What you are is a ...No, a giver-upper you are not. What you are is a consistent source of inspiration to me, for various reasons. I don't comment much, but I wante to make mention how very much I enjoy your writing. Thank you for that.Alexhttps://www.blogger.com/profile/06413132648769033987noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-52837433820610299182009-03-05T10:25:00.000-05:002009-03-05T10:25:00.000-05:00I am a little late to the conversation, sorry. I ...I am a little late to the conversation, sorry. I went through something similar when I had my first bought of Fever Of Unknown Origin. Basically to this day I suffer from an auto-immune disease which is actually named UNKOWN.<BR/><BR/>Grrrr...<BR/><BR/>I have come to accept that body is a wild and crazy thing. Sometimes it doesn't act like it is supposed to. Thankfully I don't have daily physical pain or anything. But when the bad bouts hit, I end up in the hospital for a few days to a few weeks.<BR/><BR/>Good luck. I hope you get an answer.Karenhttps://www.blogger.com/profile/14978375225313974459noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-34472100949838769862009-03-04T20:28:00.000-05:002009-03-04T20:28:00.000-05:00I am very glad that at least 2 serious conditions ...I am very glad that at least 2 serious conditions were ruled out, that is part of an answer at least<BR/><BR/>I hope Thursday is a good appt.<BR/><BR/>Don't feel let down - good things are waiting for you :)Diannehttps://www.blogger.com/profile/02946500110072411468noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-6828521687650457952009-03-04T13:23:00.000-05:002009-03-04T13:23:00.000-05:00I have a friend that struggles with two chronic di...I have a friend that struggles with two chronic diseases - both of which are diagnosed. I had learned so much from him in the last two years about taking care of myself. I tend to get worn out (as in non-functioning) if I let myself get too tired or overwhelmed or overworked. And I have to do alot of things in my routine to keep that from happening. Most of it has to do with healthy lifestyle, good rest and giving myself a break when I need it. I don't even try to push through it anymore. I simply can't without serious repercussions.<BR/><BR/>With that said - you're on the right path - you take what she said and you move forward. You can rule out two diagnoses and then somewhere down the line - you'll see someone else who might have the answers. Acceptance is not the easiest thing in the world.Katehttps://www.blogger.com/profile/01542230897888388433noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-31130391856856316752009-03-04T11:26:00.000-05:002009-03-04T11:26:00.000-05:00Scarlet: Thanks! I don't have a lot of faith in a...Scarlet: Thanks! I don't have a lot of faith in allopathic medicine when it comes to providing answers. MD's have let me down more than they've helped me over the years.<BR/><BR/>Sallymandy: I see some good healing right in front of me: a kitten wearing a frog hat. :-) Don't they say laughter is the best medicine? That's the cutest thing I've ever seen!<BR/><BR/>LL Cool Joe: I don't know why I continue to give doctors a chance. They seem to be able to help a lot of people, but they can rarely help me.<BR/><BR/>Unsigned: Yes, I guess the 30% that walk out without a diagnosis are actually the lucky ones.<BR/><BR/>Jameil: I don't blame the doctor individually - I blame the limitations of Western medicine. It has a long way to go.Sparkling Redhttps://www.blogger.com/profile/12799366562472325812noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-10477811140760047272009-03-04T10:42:00.000-05:002009-03-04T10:42:00.000-05:00one out of the eighteen? warm and friendly does n...one out of the eighteen? warm and friendly does not make up for that "diagnosis." what if there was some person not as quickly able to toss out silly diagnoses? very irresponsible.Jameilhttps://www.blogger.com/profile/02242625946552047911noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-42184640367247313342009-03-04T10:16:00.000-05:002009-03-04T10:16:00.000-05:00At least you didn't get diagnosed with something h...At least you didn't get diagnosed with something horrible. That's a silver lining.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-57154360819424266422009-03-04T10:13:00.000-05:002009-03-04T10:13:00.000-05:00You've been tagged! Check out my blog for details!...You've been tagged! Check out my blog for details!LL Cool Joehttps://www.blogger.com/profile/13916666100971008775noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-10588801101700717542009-03-03T18:34:00.000-05:002009-03-03T18:34:00.000-05:00That sounds very frustrating but at least it isn't...That sounds very frustrating but at least it isn't anything life threatening.<BR/><BR/>I hope you do get some answers though and some kind of treatment.<BR/><BR/>I never go to the Doctor's so I haven't got any advice, but I do hope you get some help somewhere else.<BR/><BR/>Good luck.LL Cool Joehttps://www.blogger.com/profile/13916666100971008775noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-10983749108656728052009-03-03T17:47:00.000-05:002009-03-03T17:47:00.000-05:00Wow, I'm sorry. That sounds discouraging. Keep u...Wow, I'm sorry. That sounds discouraging. Keep up the good work. <BR/><BR/>I think I'd do what Nicole suggested and look into Chinese medicine, too.sallymandyhttps://www.blogger.com/profile/15832828827048897372noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-68158130558192242302009-03-03T17:03:00.000-05:002009-03-03T17:03:00.000-05:00I'm glad you don't give up easily. I can see why ...I'm glad you don't give up easily. I can see why you feel let down, but I was thankful to hear what you have is not life-threatening or crippling. Still, you deserve answers and I hope your next doctor's visit is the one who solves the mystery. <BR/><BR/>Stay strong, girl friend!Scarlethttps://www.blogger.com/profile/17560614073319109150noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-57285751600535705512009-03-03T16:52:00.000-05:002009-03-03T16:52:00.000-05:00Nilsa: I'm not itching to get a second opinion bec...Nilsa: I'm not itching to get a second opinion because I feel this Dr. was quite thorough. There probably isn't a name for my cluster of symptoms. That doesn't mean it won't ever have a name, just that medical science hasn't catagorized everything yet. <BR/><BR/>Nicole: I've tried accupuncture but it's never been terribly effective for me. When I see my naturopath he'll give me homeopathic medicine, which is helpful in my experience. And incidentally the individual bones are called vertebrae and the whole structure is the spine. :-)<BR/><BR/>Keera: Yes, I was tested for Lyme disease and it was negative. I may go for allergy tests if my naturopath can't help me sufficiently. I've had food and environmental allergies tested before, but that was a while ago and things can change.<BR/><BR/>Ron: That's exactly what I do when I watch that show! Usually they only interview the Dr. that solves the mystery. One time they actually had a g.p. on the show who was the one who let his patient suffer for years with a huge mass in her lung. I was shocked that he would show his face on national TV and admit to screwing up so badly. Would he have any patients left after that?<BR/><BR/>San: There's no such thing as an osteopath in Canada. My massage therapist does cranio-sacral therapy, which is osteopathy without the medical degree, so far as I understand it. I love the cranio-sacral work and respond very well to it. I go once or twice a month and it helps a lot.<BR/><BR/>Aurora: I knew I could count on you to provide the Latin translation! I tried Babelfish but they don't have a Latin translator and I couldn't remember much from grade 10. ;-)Sparkling Redhttps://www.blogger.com/profile/12799366562472325812noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-71942050427743068262009-03-03T16:18:00.000-05:002009-03-03T16:18:00.000-05:00Maybe it's fear that makes you vulnerable, more th...Maybe it's fear that makes you vulnerable, more than hope? I would hate to blame Hope :)<BR/>From Hope: Luckily, you don't have an identifiable bad disease. Yay! So you have time to find out more about it. Also, you live in Canada, so you have the added benefit that getting second opinions is free. Best wishes for the Naturopath visit!<BR/><BR/>p.s. Red Spots? Why, that's evidently puncta rosea!Emma Gorst https://www.blogger.com/profile/09692637018538270794noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-48118874725718452422009-03-03T15:39:00.000-05:002009-03-03T15:39:00.000-05:00How frustrating! I hope the naturopath has someth...How frustrating! I hope the naturopath has something for you. Have you thought about seeing an osteopath?Sanhttps://www.blogger.com/profile/18245301334922883500noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-26770627871195656812009-03-03T15:32:00.000-05:002009-03-03T15:32:00.000-05:00Well if you've watched that medical mysteries show...Well if you've watched that medical mysteries show you are right on track. How many times do I watch that show where Dr's will give out lame excuses time after time until the patient, that never gives up, calls more and more doctors. Finally they hit a doctor that seems to care or has a brain and answers are found. I usually end up yelling at the TV when a person suffered for 10 years and a little shot fixes everything. I'm screaming "Give those idiot Dr's Hell!!!" I want to see the ones that blew the patient off apolagize for missing the diagnosis for so long.Warped Mind of Ronhttps://www.blogger.com/profile/15670039992710968421noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-62196468247211944792009-03-03T15:11:00.000-05:002009-03-03T15:11:00.000-05:00Meh. Reminds me of every time I go to the doc's wi...Meh. Reminds me of every time I go to the doc's with something, they tell me it's a virus. I'm surprised your doc didn't try that one with you! It could be. Ever been tested for Lyme Disease?<BR/><BR/>Anyway, get a second opinion. Maybe try an allergy specialist, instead.Keera Ann Foxhttps://www.blogger.com/profile/07466103379725251225noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-14929848637459126122009-03-03T15:06:00.000-05:002009-03-03T15:06:00.000-05:00Keeping my fingers crossed that you find out what ...Keeping my fingers crossed that you find out what it is!<BR/>At least she was friendly and "tried" to find out what's going on.<BR/><BR/>Did you ever try someone that's maybe specialized on Asian medicine like Acupuncture and such?<BR/><BR/>The standard answer I got from Docs when I went for my Backpains was make more sports.<BR/>Later it was found out that two of my bones in my Vertebrae (what do you call those in English?) are crooked.<BR/>Two Therapies helped longer terms so far. One was Accupuncture.<BR/><BR/>Best of Luck to you!Anonymoushttps://www.blogger.com/profile/06735273216574108695noreply@blogger.comtag:blogger.com,1999:blog-5620546355443994788.post-67820258550905345182009-03-03T14:55:00.000-05:002009-03-03T14:55:00.000-05:00If you feel a diagnosis is incomplete or a treatme...If you feel a diagnosis is incomplete or a treatment plan is not suitable, seek a second opinion. You need to have some options and feel comfortable with a treatment plan!Nilsa @ SoMi Speakshttps://www.blogger.com/profile/08474642034399063234noreply@blogger.com