Friday, November 13, 2009
Vampires Got Me
Thursday, September 10, 2009
The good, the bad, and the ugly
On Monday I went to a girlfriend's house to be spoiled. She had been to an organic farm the day before, picking veggies with her own hands. I sat on a wooden chair and we chatted as she washed, peeled, and chopped. Before long the kitchen was filled with the scent of fresh rice and vegetarian green curry.
We lounged in her bed-sitting room, which is full of pillows, silk scarves draped over things, and little fairy lights strung across the ceiling and over the window frame. Her cats snuggled up to me and covered me with the fur of their affection. We talked about all the things good friends talk about. It was splendid.
The Bad:
This week I have had troubling news of two ill relatives.
One beloved of mine had some very troubling test results, and is facing the possibility of surgery. I am sending her big hugs (I think she may be reading this - Hello!) and big love. The news is mainly hopeful, but it's still been a very scary and uncomfortable experience for her and her close family.
Yesterday I had news that someone on the other side of my family is headed on a steep downward slope towards a nervous breakdown. She is to the point where she's not eating consistently, not bathing, and not able to keep her home clean. This side of the family has always been strangled by strict No Talk rules. I.e. there are very few real things that they will actually communicate on at any relevant level. We will have to break some of the No Talk rules to save my beloved relative, if she's willing to be saved. So far she's rejected all helpful suggestions of therapists, vacations, medications, or even company for a cup of tea. It's a bad situation.
I'm praying for both of my loved ones with all my heart.
The Ugly:
(LL Cool Joe: Grossness warning!! Avert your eyes!)
This morning I coughed up an unspeakably nasty phlegm demon. At first I thought this was a bad sign: The infection is upon me! I'm getting worse again! Hustle for some antibiotics!
But then I felt so much better within the hour that I now believe it was an exorcism. My throat hasn't tickled and I've barely coughed all day. My pathetic-o-meter rating is falling as I write! (By which I mean - I am becoming tangibly less pathetic before your very eyes!)
Once it had left my body, the phlegm demon scuttled off and down into the sewer system. I heard the echoes of its evil laughter retreating. So look out. Beware of the drains. It's looking for its next victim.
Monday, September 7, 2009
(((HUGS)))
Sunday, September 6, 2009
Struggling
Saturday, August 8, 2009
Still Freaking Sick
Thursday, August 6, 2009
The Experiments
Monday, April 27, 2009
Honeymoon Abrupt Ending
Monday, March 9, 2009
The Naturopath
Tuesday, March 3, 2009
Meanwhile, at the rheumatologist's office...
After 16 years of intermittent symptoms, some phases of which were so disabling that I doubted my ability to continue working full-time, I was hoping yesterday that I’d get my Mystery Diagnosis. I was glad that I’d arrived at the rheumatologist’s office early, because I felt so overwhelmed by emotion as I checked in that it took me a quarter of an hour just to settle down and collect myself.
Generally speaking I don’t allow myself a lot of freedom to feel the feelings that my symptoms trigger. I do write about the subject, or sometimes talk to someone who cares, but most of the time I’m trying to push through the fatigue, pain, weakness, and other symptoms that come and go, so that I can carry on with my life. I ignore it at work. I push through so that I can do shopping and housecleaning. I put it aside so that I can enjoy socializing with friends. But at some level I guess it builds up, because there was a large amount of sadness, aloneness, and frustration just waiting to break through.
Having hope put me in a very vulnerable position.
Eventually the doctor called me in. She was a pleasant woman, probably only a few years older than me. She went over my blood test results, the symptom list I’d typed in advance, and did a basic physical examination. Then she presented her findings.
I definitely don’t have lupus or rheumatoid arthritis. Which is good news, for sure. That means that whatever it is probably won’t kill or cripple me in any permanent way.
So what do I have? First she warned me that between 30 and 40 per cent of patients who see her for aches and pains leave without a specific diagnosis. The field of rheumatology deals with a few well-established syndromes, but there are many constellations of symptoms that don’t fit neatly into any particular diagnosis. No offence to rheumatology, but one third of patients leave with nothing but more questions? Seems to me like someone needs to hurry up with the research and figure out what’s going on, because that’s not a very good track record for the specialty.
The furthest she would go was to “suggest” that I might have fibromyalgia, with the emphasis firmly on “suggest”. Due to my place of work I know a little about fibromyalgia (FM) already. Some doctors diagnose it based on the classic criteria: 1) widespread aches and pains lasting more than three months and 2) at least 11 of 18 specific points on the patient’s body must be tender when pressed. Even given those two criteria it is a fuzzy-edged and often-disputed diagnosis. Two physicians who examine the same patient will often disagree about this diagnosis.
Another way doctors will diagnose FM is to use it as a
Imagine that you go to the doctor with red spots all over your body. The doctor tells you authoritatively “You are suffering from Circulae Scarlotum” or whatever the Latin translation of “red spots” is. You feel much better because you think this means the doctor has it all in hand, but really all he’s done is tell you in another language that you’re covered in red spots, which leaves you no further ahead. Not every diagnosis is inherently meaningful or helpful.
I have to give credit where credit is due: she was very warm, friendly, and informative. Relative to many doctors I’ve seen, she was generous with her time, explaining things to me that she must have explained hundreds of times before without any hint of impatience, and answering my questions without a trace of annoyance.
But here’s the most disappointing part: she gave me no treatment options whatsoever. No medications. No further referrals. Just advice to do moderate exercise and keep up with my yoga practice. So in that sense I’m no further ahead than before. I would have been happy to leave without a diagnosis but with a prescription for some kind of painkiller that wouldn’t completely bugger up my stomach. No such luck.
*sigh*
Anyway, I’m not giving up just yet. I made an appointment to see my naturopath on Thursday. I think it’s been five years since my last visit. He’s been my N.D. since 1993, and although his methods produce slow, undramatic results, he can often help me with problems that fall outside the scope of allopathic medicine. So, I’ll see what he has to offer.
In the meantime I’m feeling a little let down, but I’ll get over it. I’m not a giver-upper.
Sunday, March 1, 2009
Saturday Stuff
I brought my wedding dress to my favourite seamstress for alterations. I was worried because the dress is beaded in the area that needs to be altered, and not just anyone is willing to fuss with undoing and redoing beading by hand. But Mrs. Lee didn't let me down. Her face lit up with delight when I unzipped the garment bag. "So pretty!" she exclaimed, "Where you buy? How much?" And when I told her: "Ah, good price, good price." Of course she can do the beading - she has mad sewing skills! So that's one worry off my mind.
I had dinner with my step-dad. We got off to a great start. He rang my doorbell to let me know he'd arrived - I could see the rental car waiting right behind him. (His regular wheels are in Florida for the winter. It's a long story.) He told me he'd wait in the car and as he turned away I shut the door to put my coat on. Moments later I opened the door to the car that was waiting outside my home. The light in the car came on - there was some young Asian guy in the driver's seat saying "No no no!" and pointing emphatically to another car, just down the common driveway. I laughed at myself. Nice one. My step-dad apologized for failing to warn me that it wasn't him parked outside my front door.
Later we closed the evening with a satisfying symmetry. A friend of his who he hadn't seen in a few years was in town, staying with his daughter. My step-dad remembered that she lived in the corner house at the end of a certain block. I waited in the car while he went to pick up his friend to go for coffee after dropping me at home. The door was opened by a suspiciously young, good-looking guy. There was a moment of conversation, and then my step-dad returned to the car, smiling and alone. Wrong block, wrong house. I guess it was that kind of night.
The point of all that was for us to have a nice dinner together, which we did. And for the first time in more than a year I found that I could be with him without feeling angry, or bitter, or resentful. Since we had our heart-to-heart talk the last time he was in, despite him still being a complete doofus about how he's handled moving out of my mom's house, I've slowly but surely forgiven him. Or mostly so. And that's a wonderful thing to have discovered, because I wasn't even aware of it until last night.
I wanted to point out all those good things, because other than that, Saturday was difficult. Although I haven't written about it in a while, I'm still having aches and pains on and off, and Friday night was a bad one. The temperature in the morning was 10 degrees C, which fell to -15 degrees C by walk-home time. Even though I brought a bag of extra layers with me to work and wore them on my walk home, my body couldn't handle the extreme change. By Friday night I was on the couch, aching from my shoulders to my toes.
I haven't been able to tolerate Ibuprofen since a few years ago. I switched to Acetaminophen (Tylenol) because that's supposedly easier on the stomach. That worked for a while, but then came the day when I took one little tablet, and got some very familiar tummy pains. I got scared off it for a while, but in the back of my mind I wasn't sure - maybe it was just a fluke and I should give it another chance. On Friday I was in enough discomfort to take the risk.
At first I thought I was OK. The pain receded within 20 minutes and my tum was fine. I was like "Score! Painkillers rock!" But it was not to last. In the middle of the night I felt the reaction come on, and all of Saturday was a misery. My stomach hurt enough that I couldn't ignore it, and at mealtimes instead of getting hungry I got nauseous. For hours and hours it was relentless. I know it could be worse, but it did get me down. The part that was most dispiriting was knowing that one more avenue of relief has been permanently closed to me. With all the other major NSAID's (ex. Aspirin) clearly warning of stomach upset in the side effects, I am left with no option but to slather myself from head to toe in Rub A535, which is better than nothing, but it's not a useful remedy if I'm anywhere other than at home. I can't very well strip down in a washroom stall at work and goop up my back under my proper work shirts.
Here's something: I have a surprise appointment with a rheumatologist tomorrow. I didn't realize that my g.p. was going to refer me. I had blood tests done in early December, and didn't hear anything back from him, so I assumed that the numbers didn't indicate anything useful. When I got a call at work on Friday stating that I had been referred, I was totally surprised. So, maybe my blood tests showed something significant after all. It would be good to have an actual diagnosis, and possibly even some treatments that don't hurt me. I'll let you know how it goes.
That being said, you might not hear much from me this week. There's a high likelihood that I'll be working with half my usual staff all week, as two ladies in my department both came down with the symptoms of a vicious cold that's making the rounds. I'll probably be working late every day, and running off my feet the whole time. So, have a good week, and keep your fingers crossed for me please, around 2:00 pm tomorrow, Eastern Standard Time. I'll be back with an update as soon as I can.
Wednesday, February 4, 2009
An Apple a Day
The irritating bronchitis is still sapping my energy. Also, in the past two weeks I have had three episodes of seeing strobing, crescent-shaped lights or patches of static. These visual disturbances hang around for around 25 minutes from the buildup to when I can finally see normally again. This, as you can imagine, is not very helpful when I'm trying to work. I need to be able to READ THINGS. And see people. You know, the basics.
I checked with Dr. Google, and found that the most likely cause is something called acephalgic migraine, which means you get a migraine aura without any headache. That's not too bad, compared to what people with actual, serious migraines go through. I couldn't see any mention of treatments. I think it's one of those "just live with it" things.
Then again, there's a minute chance that it could be an indication of something more serious.
So, do I bother going to my doctor? Take a whole half-day off work to sit in his waiting room for an hour so I can talk to him for five minutes? He'll probably tell me that I should get more rest, and take an expectorant for the bronchitis. Then he'll tell me that the migraine thing isn't anything to worry about and I should just make sure to stay hydrated and eat a balanced diet. Then I'll leave feeling like I totally wasted my time.
Of course, if I don't go, there's that one in a million chance that I'll be sorry I didn't. As my good friend Logan pointed out, always there to reassure me, it could be a tumor pressing on my optic nerve or something. Seriously, someone I work with has a sister going through chemotherapy for that exact problem. It happens!
I would say that 85% of the time when I've consulted with doctors they've been completely unable to help me (or at least unwilling to investigate my complaints further). For example, I used to suffer from Irritable Bowel Syndrome. My doctor said "live with it". Then I got a naturopath, and the naturopath cured me. Take THAT, allopathic medicine!
I suppose I could go see my naturopath... but he's in my old neighbourhood where I lived 13 years ago, and it's a huge pain in the butt to take public transit all the way to his office. Especially when I'm still so fatigued all the time. I'm too tired to get help for being tired - does that make sense?
Argh.
Wednesday, January 28, 2009
Walkabout
I didn't realize how much I love my outside, fresh-air walks until I was stuck inside for 9 days, sick. I did venture out a couple of times over those days, but I didn't get far. My legs were wobbly as jelly. I shuffled to the end of the block and home again, exhausted.
On my first day back at work, it was minus umpteen outside with a wind chill. I knew that if I attempted the 20-minute walk my energy would be completely spent by the time I stepped in the door. So I cabbed it. It felt so wrong to hire a car for such a short drive.
I hated being in that cab. It was stuffy. Inside my down parka, I started sweating as soon as I got buckled in. We idled, trapped in the morning traffic. My leg muscles itched to get moving.
I worked for seven hours that day, until the office started to spin. Then I figured I'd better take another cab home. Lather, rinse, repeat.
Even though I was officially back to normal life, I still felt crappy. Depressed. I didn't sleep well that night.
The next day I felt well enough to set out on foot. It was so fantastic to be on the move, breathing un-furnaced air, getting a little sun on my face. The more I walked, the better I felt. My mood expanded like a hot-air balloon filling up. My cramped muscles heaved a sigh of relief and began to un-knot themselves. That night, I slept like a baby.
Never before have I appreciated how essential walking is to my mental health. It's my me-time, my thinking time, my prayer time. It's my appreciating-nature time. I've read that walking is therapeutic in that it harmonizes the two hemispheres of one's brain.
I can't imagine living like some people apparently do. I've heard that some folks never walk anywhere. They'll take their car to go two blocks to pick up a loaf of bread. Or maybe they live in a subdivision where nothing is in walking distance of anything else and there aren't even any sidewalks. I've visited places like that. They feel as alien to me as the moon.
What place does walking have in your life?
Thursday, January 22, 2009
Control
Tuesday, January 20, 2009
Reports of my good health...
Sunday, January 18, 2009
Still?
Thursday, January 15, 2009
The Cold Post
I fought the cold, and the cold won. On Monday and Tuesday of this week I did nothing but recline on my couch, feet up, remote control in hand, semi-conscious and re-discovering the gems of daytime TV. There's nothing like a low-grade fever to lay a shiny gloss of fascination over programs like American Justice and Dr. Phil.
Normally I get bored after two consecutive hours of TV. It was pretty cool to just relax and veg out for two whole days.
By Tuesday night I wasn't feeling a whole lot better, but in my mind's eye I could see the work stacking up on my desk, so I thought I'd better go in. The cold (illness) waited until I was back at work to morph from a general feeling of achiness and fatigue into typical, slow-torture cold symptoms. The delicate tickle at the back of my throat that cuts me off in mid-sentence, or wakes me up at five-to-ten-minute intervals all night. Epic sneezes. My face looks like an unmade bed.
I would love, LOVE to crawl back under my duvet and channel-surf my way through to the end of the week. But I'm not quite sick enough to justify hiding out at home. Blick. At least those crunchy sounds I was hearing in my right ear didn't come to anything. (Watch - now that I've written that I'll have a raging ear infection by this time tomorrow. )
There are some good things. I always like to remember the good things.
I bought new boots on sale: knee-high and lined with lambswooly stuff that makes them very cozy. I tested them out yesterday and today, taking 20-minute walks in the deep freeze, and my feet were toasty. Huzzah! I'm incredibly well-equipped for winter this year. I have layers like you wouldn't believe. Fleeces, hats, mitts, scarves, long-johns, over-the-knee-socks... in fact, I have to be careful not to overdress. I even have snowpants, which I haven't resorted to yet this year. If I wear them in anything warmer than -25 C, I broil.
I'm not letting the cold (weather) or the cold (illness) bully me out of having some social fun. I went out for a Japanese dinner last night with my super-awesome little sister, which was great. And I have a plan to go dancing with a girlfriend of mine for her birthday this Saturday. I have to get well by then! I can't think of a way of working Epic Sneezing into my Flashdance routine.
Monday, December 29, 2008
Broody Hen
But every once in a while, maybe once or twice a year, I get all broody. It's typical for this to happen over the Christmas holidays, when families with young children all seem so magically happy. I spend time with my grandparents, and see what joy their children and grand-children bring to their lives. I worry about being old and alone, with no one to look after me.
For the past week, I went through this familiar emotional cycle. I don't like to talk about it, because the answer most people will give me is "No problem! There's still time! Hurry up and have a baby!" That's not what I need to hear. I KNOW in my gut that having a child would not be a good idea for Ken and I. It's just not an easy decision to live with all the time. Just like having kids isn't always easy, but that doesn't mean you give them up for adoption because you've had a bad week.
Ken and I are like two playing cards, leaning up against each other to form a somewhat stable triangle. Neither one of us is consistently "the strong one". We take turns supporting each other through life's trials. We both came from childhoods that were difficult, and we're both sensitive, some would say oversensitive, emotionally, psychically, and physically. Just getting through life as it is now often overtaxes our resources. We can comfortably look after ourselves and each other, but start adding demands on top of that and the effort can only be maintained for a few weeks or months before either of us might start to crumble. I speak from experience.
If I try to willpower my way through more than I can handle, my body starts to seriously malfunction. I have a knack for somatizing my feelings.
I have a history of depressive phases, which can be triggered by too much stress and insufficient sleep. I think I'd be the perfect candidate for a truly horrifying post-partum depression.
In a perfect world, if I could trust myself to be as resilient and adaptable as I would like to be in theory, I would love to experience motherhood. Some people have told me that I should take the plunge, because I'll be surprised at what I can accomplish, when I have to. In my life it's most often worked the other way. I've optimistically made grand plans, assuming that because I'm committed to my goals I will be able to tolerate any hardship to achieve them. I truly believed that if my mind could conceive it and my heart could believe it, I could achieve it. I overestimated myself time after time. Experience proves that the best of intentions, positive thinking, and all my willpower (and trust me, I'm stubborn!) can't overcome my limitations.
Therefore, once again I must confirm to myself the wisdom of not becoming a parent. I'd rather keep the hard-won stability and happiness that I've finally achieved, than risk it all for a high-stakes gamble. In the meantime I'll keep volunteering at Babyland, and satisfy some of my maternal instincts that way. I promise not to steal any of the babies.
Monday, December 22, 2008
More Glad Tidings
San has been ever so kind, and honoured me with a very flattering award:
To quote San's blog, The PREMIO DARDOS award is "given for recognition of cultural, ethical, literary, and personal values transmitted in the form of creative and original writing." Wow. That's one classy recommendation! I feel truly humble.
Of course an honour like this must be passed on. After deep and searching thought, I have chosen the following honourees:
1) Ron at Warped Mind of Ron, because he writes in so many styles: poetry, fiction, and memoir. How much more literary can you get?
2) Whatigosofar because he's definitely transmitting his personal values through original writing. No punches pulled on this blog.
3) Nilsa at Somi is never afraid to speak her mind. She does so charmingly and gracefully.
4) Keera at A Roll in the Universe posts snapshots, both literal and literary, of life in Norway.
5) Dianne at Forks Off the Moment is deserving in every way, especially with regard to ethical values.
Congratulations to all y'all! ;-)
Good News #2!
Slowly but surely, I have recuperated from my spell of ill health. The aches and pains are gone, as is the shortness of breath. My hands no longer require five minutes of warm-up exercises before they can be used in the morning. I'm not breaking out in hives either. I'm still more tired than usual, but other than that, I'm back to my normal self again.
Of course the blood tests didn't show any significant results. I guess it was just my body's wild and crazy way of responding to stress. This whole past year has been pretty challenging, what with my mom and step-dad's divorce and me being caught in the middle. I don't think it's any coincidence that my health crumbled shortly after my mom finally said that she was starting to feel alright again. I was running on empty, and when I learned that she didn't need me to be strong for her anymore, I just went down like a puppet with my strings cut. 10 months of accumulated tension was finally released.
I'll be taking it easy for a while longer. I can feel that I need a long rest. A few days off for the holidays couldn't have come at a better time!
